Monday, April 28, 2008
Saturday, April 26, 2008
My first week back at work was a little rough on my body both physically and mentally. Getting up at 5:45 am was definitely a rude awakening since I was used to rolling out of bed whenever I felt like it for 3 months. Sitting in a rolling chair all day also took it's toll as I worked on finding way of sitting that was the least painful position. I have found out this week that I am finally able to discern and define the differences symptoms of a tethered cord and chiari/cranial settling effects.
Although the tingling/numbness in my arms and legs is gone I am still feeling stiffness and pain in my neck and the back of my head. This next week will be a doosy as the weather forecast is calling for a low pressure front to settle like a blanket over our area and bring rain off and on all week long. But on the brighter side of things I found a new and fun website yesterday. For an avid movie/TV watcher it's been fun exploring all kinds of old and new tv/movie clips. Check it out for yourself ~ http://www.hulu.com/ .
Here are some of my favs so far ~
Spoiler Alert ~ If you haven't seen JUNO yet don't watch the clip below.
Tuesday, April 22, 2008
But six years after the series ended (and a decade since the last film),
the new movie promises to be a lot more straightforward than fans of the show
might expect. Written by series creator Chris Carter and his right-hand man
Frank Spotnitz — and stemming from an idea they'd been kicking around for years
— it's a stand-alone story, set in the winter of 2008, that Carter describes as
a ''suspense thriller'' akin to the monster-of-the-week episodes from the show's
early days. Gone is the occasionally baffling mythology — Black oil! Ice picks!
Bees! — that came to define the series. The new film is designed to satisfy the
faithful while courting a new generation of fans raised on Saw and Hostel. ''Oh,
it's a great relief to not have to reweave all the strands of the narrative,''
says Spotnitz. ''We just wanted to tell a really good story with characters that
Monday, April 21, 2008
During my drive to work this morning I heard the song, "In the Blink of an Eye" and realized how time really flew by while I was home recovering. Of course I had lots of grandiose ideas of projects that would keep me from being bored. I still have a long list of movies I have yet to see. Time totally got away from me! What's more amazing is that the memory of the pain I felt seems to have faded. There wasn't one time during my recovery that I broke down and cried from the pain ~ I wasn't expecting that reaction at all. I found out that my pain tolerance is pretty high. These things were encouraging to me. Press on ~ push through to the next obstacle. ~ Sigh ~ So, what's next? Waiting for my real life to begin ~ probably ~ but trying to stay in the here and now and not look too forward into the future.
Saturday, April 19, 2008
A couple of weeks ago Christopher Walken was the host of SNL and I have to say that every skit, down to the very last one was hilarious! I especially enjoyed the one I posted above about the indoor gardener who's scared of his plants. His solution ~ put googly eyes on them so that he can establish eye contact with them. You just gotta laugh!
Saturday, April 12, 2008
Wednesday, April 9, 2008
I still had some heavy duty migraine medicine so I took that naively thinking that would calm the beast. Long story short, the migraine medicine didn't do anything but make me feel loopy. I was curled up in a fetal position most of the day ~ wanting to die. What had I done to bring on a headache like that???? By the time John came home from work I was in tears and suddenly remembered that I had Morphine! So I took some and about an hour later the headache was beginning to diminish. The Morphine left me feeling super loopy and nauseated! So ~ yesterday ~ not so good ~ I am hoping for a much better day today!
Monday, April 7, 2008
You might have read in earlier posts that I have a hard time getting to sleep. It's hard to turn my brain off ~ I believe that my brain tail is to blame most of the time. I have learned to follow up on dreams that pull at my heartstrings. As demonstrated this morning, there's a reason why people show up in my dreams. No wonder I am so exhausted in the morning! I have a theory that other people with Chiari malformations are also ultra sensitive to other's emotions ~ no matter how far away they might be. I know that no one in the medical community would verify this, but I have come to know that the brain tail isn't all that bad!
What a beautiful day it was today! While I was walking along the river I saw signs of life everywhere ~ munks (chipmunks), caterpillars, baby robins, geese, ducks ~ and some of the trees were beginning to bud, too! Much to my surprise, I have sun kissed shoulders to prove that I spent more than an hour under the blue skies and brilliant sun this afternoon.
I was checking out the site meter on my blog and was amazed how many hits I got last night after the re-airing of the Extreme Makeover about the Carter Family. I usually get about 40 visitors on the site a day and just in the three hours after the show aired I got 150 hits. Today so far I have about 111 hits. I am beyond thrilled that education about Chiari Malformations is getting out there ~ being educated about the disease is half the battle. Even though I don't agonize and blog daily about the pains of having a brain tail I am always thinking of those of you out there that also have Chiari. Remember, I still have my brain tail, but it's just not beating up on me as bad as before the detethering.
Thursday, April 3, 2008
I had called to get pre-authorization for numerous MRI's, a CT scan and a neuro-followup appointment in May. Her reaction was comical ~
"Certainly ~ just let me know what you need and I will write up the auths for
you. You know, people who come to us with Chiari (she pronounced it like
'chair-y') ~ we always send them to TCI ~ they offer the
most excellent treatment there!"
For those of you who have been reading my blog since the beginning, you know that it took a year and a half to get approved to go to TCI. I clearly have educated the insurance company and have hopefully paved an easier road for others in their journey to get to TCI. Anyway ~ the letters I got from the insurance company were approved auths for my appointment in May ~ yeah. It's so nice to get pre-authed without the whole red tape drama!
About 3 weeks ago I had sent a letter to the hospital requesting copies of my medical chart so that I would have the medical terminology for the findings during the surgery. Today the letter I received told me that in order for them to release my files I would need to send them payment for $123.55! SERIOUSLY ~ these are MY records ~ do copies and shipping really cost that much! How big is my file?! Anyway ~ maybe I will save some $$$ and see if they will let me read my file while I am in town for my appointment. What a conspiracy!
When I woke up this morning I was rudely reminded that my brain tail is still alive and kicking ~ me in the head! Go figure ~ there's a low pressure front moving in bringing frozen precip and rain tomorrow! Wish I didn't have those friendly reminders ~ I would like to just forget about my Chiari all together! The prospect of brain surgery still weighs heavy on my mind, but truth be known, even if I do have surgery there's no guarantee that I will not have any more headaches. I will have some peace of mind after my follow-up visit at TCI in May. Sigh ~
Tuesday, April 1, 2008
The air was thick with humidity, there was a stiff breeze blowing off the river, my legs felt strong and my gait was quick. So this is what it feels like to feel 'alive'! It's been so long since I have felt this way ~ I finally feel like I am coming back to life. Chiari had really pulled me down to the deep dark pit and I didn't think I would ever be returning to the land of the living. But ~ here I am ~ living, breathing, pain free except for an occasional low pressure headache. Time heals all wounds ~ I am living proof. So for today ~ I am incredibly encouraged and hopeful.