Our North Colonie Pee Wee Large cheer team competed at the Eastern Regional competition last weekend in Trenton, NY. Our cars were covered in shoe polish with NORTH COLONIE BISON. The top two teams go on to compete at the National level in Florida, Walt Disney World. Last year we missed going to Nationals by TWO points.Saturday, November 28, 2009
NCB ~ Simply ~ The BEST
Our North Colonie Pee Wee Large cheer team competed at the Eastern Regional competition last weekend in Trenton, NY. Our cars were covered in shoe polish with NORTH COLONIE BISON. The top two teams go on to compete at the National level in Florida, Walt Disney World. Last year we missed going to Nationals by TWO points.
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Labels: believe, dreams, encouraged, enthusiasm, faith, kids, pride
It's the Climb
I can almost see it, that dream I'm dreamin but,
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Labels: Chiari, faith, journey, perspective
Friday, November 13, 2009
I Can Only Imagine
Blogging has been a way for me to express what I cannot vocalize and I am trying to get back in the swing of things by blogging more. As my one year post decompression date is beginning to appear just over the horizon I seem to be doing a lot of reflecting. There were a lot of blogs that I started and they ended up in my draft box. This one I actually started on 10/12/07 ~ I thought today would be a good day finally post it.
Facing fear ~ staring it in the face ~ thoughts of death and dying have come up for me, for obvious reasons. But you see, to die would be devastating for my family and friends, but for me, I can only imagine.
When I wrote my thoughts about staring death in the face, I hadn't even been detethered yet ~ but I was processing the imminent fear that comes when facing brain surgery. I look back and smile knowing that putting it all out there, expressing my fear, laying it all down for the Lord to take it from me ~ my fear was totally dissolved by the time I had surgery.
WE all face fear on a daily basis ~ rather it's a fear of spiders or death ~ we all deal with it in different ways. For me, fixing my eyes on eternity put everything in perspective and it's a good reminder for me today. I woke up with a brain tail headache ~ it's the 13th and a Friday today ~ not that I am superstitious, but I am not firing on all cylinders today. Note to self ~ no operating heavy machinery today!
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Sunday, November 1, 2009
Open Minded ~

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Sunday, October 25, 2009
If Looks Could Kill
This was the result of me leaving work early on Thursday to pick up a sick child ~ must make the best use of my time off, right? Captain Kirk so did not enjoy the DUDE hat ~ I blame him for me having lost my voice completely today!
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Labels: animals
Wednesday, October 21, 2009
Conquer Chiari Walk ~ 2009
So I am a little late on posting about the chiari walk that took place on September 26th ~ life has been crazy busy. The morning of 9/26 was absolutely gorgeous ~ the sun was shining and the air was crisp. I don't know the final count of how many walkers participated, but there was a good size crowd of brain tails and their friends/family. I ended up being the grand Marshall for our walk, because I was the only one who knew the route. Thank goodness the vertigo is gone or it would have been a swirly walk for everyone!
The best part of the brain tail gathering was being reunited with my brain tail friends who came from near and far. So good to see everyone and spend time catching up on our lives. We are all a hearty bunch. On the outside you might see smiles, but inside we are all struggling with either pain, financial burdens due to the aftermath of insurance bills, emotional stress ... We have our good days and other days when it's a struggle to crawl out of bed. Getting together reminds us that we are not alone in our chiari journey ~ we draw strength from one another ~ and make that choice to keep taking the next step forward in life. It's not easy, but we are all fighters ~ bound and determined to not let chiari win.
Thanks to all of you who support a chiarian in one form or another ~ every day we are one step closer to conquering chiari.
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Labels: brain tail, Chiari, friends
Saturday, October 3, 2009
Happiness Is Like A Butterfly
A month has flow by without any blog posts and yet in my draft blogs cue I have at least 70 post ideas just waiting for me to breathe life into them. ~sigh~ Oh how I wish I was wittier and had an uber interesting life ~ but truth be told ~ I am finding it hard to put my thoughts down so that they will make sense to anyone but myself.
The past month has flown by in a flurry of bug spray and cheerleading practices. I have probably swallowed a gallon of deet by now in a fruitless attempt to ward of the skeeters (that's Texas for mosquitoes). I volunteered to be an assistance coach for Hannah's cheer squad this year and I have had a great time getting to know all the girls and learning the cheers and stunting techniques.
On September 1st I passed my Microsoft SQL Server 2005 exam ~ this was my second attempt and I feel like a huge weight has been lifted off my shoulders. Funny how sometimes life throws a big road block at you. Most of the time the only option you have is to remove the barrier by passing through it. For months I felt stuck ~ unable to move forward in my life. When I sat down to take the test at the computer testing center, I bowed my head and prayed right then and there ~
'Lord ~ Please give me the brain power to pass this test so that I can focus more on my purpose for being on this planet. I don't have to make a perfect score ~ just help me to pass.'
After completing the book questions I felt pretty confident that I had passed the first part of the test, but as soon as I started the application piece of the test I felt the despair creeping in as I was certain there was no way in hell that I would pass. You can imagine my complete surprise at the end of the exam when the message popped up on the computer screen exclaiming that I had made a 70 and passed the exam. I remember answering the computer out loud with ~ 'Are you freaking kidding me?!! I proceeded to do my happy dance all the way to my car with great relief and humbling tears of joy as I thanked the Lord for answering my prayer.
When I wasn't looking ~ I think a butterfly, or two, alighted on my shoulder ~ happiness, is that you?
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Thursday, September 17, 2009
Sisterhood/Brotherhood of the Traveling Brain Tails
Next week on September 26th, I will be walking alongside other brain tails, friends and family in the second annual Conquer Chiari Walk Across America walk here in the Albany area. Participation is free but you can make a donation on the day of the walk or online. Here's the link for the online donations ~ https://www.conquerchiari.org/ccwaa09/ccwaa_donate.asp?user=LacieHeiser ~ If you would like to sponsor me, select the Walk Location: New York, Albany ~ Then you can select my name. Even if you don't have much to give, even a little can add up.
September 26th is an emotional and significant day for me. My chiari brain tail was discovered on 9/26/06 ~ three years ago. As I pause to glance over my shoulder and reflect on my three year that has brought me here today, I am overwhelmed with every emotion ~ fear, denial, disappointment, hopelessness, hope, pain, elation, frustration, sadness, joy. How did I make it through those incredibly tough times? All of the neurologist appointments, hours of phone calls with the insurance company, volumes of paper work, countless MRI and CT scans, tethered cord surgery, invasive cervical traction, brain decompression, morphine pumps, hours of physical therapy ~ all these things and more have consumed my life for the past three years. Every baby step I took was taken in faith ~ a blanket of reassurance to keep me moving forward.
As I briefly glanced at the list of walkers signed up for Albany walk ~ I recognize and know a large number of people. These amazing individuals were strangers to me and now have become instant friends all because of our brain tail bond. I am so thankful for all the friends I have made through my chiari journey ~ they have made the road a lil bit easier to tread upon.
We all walk to raise money for chiari awareness and research to one day find a cure. There IS NO CURE FOR CHIARI. Painful surgeries will help prevent some irreversible nerve damage and perhaps paralysis. But if I would dare to speak for many other brain tails ~ we all live with some degree of pain on a daily basis ~ We deal with it and keep moving forward. But wouldn't it be awesome to find the gene that goes crazy during gestation to put a stop to chiari once and for all. Life is for the living. I'm looking for the brighter days, won't you join me?
CONQUER CHIARI WALK ACROSS AMERICA
WHAT? A series of coordinated Chiari walks held at the same time across the country.
WHERE? This year, the walk will take place at more than 30 locations. Check the List of Sites to see if there is a walk near you.
WHEN? Saturday September 26th, 2009. September has been named Chiari Awareness Month in many states. In conjunction with the Walk Across America we hope to get more states to recognize September as Chiari Awareness Month.
WHY? To raise awareness of Chiari and to raise money for vital research. In 2008, the Walk Across America raised $170,000 for research, with 90% of the money going directly to fund exciting research projects at major universities and treatment centers.
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9:03 PM
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Labels: brain tail, Chiari, friends, hope
Friday, September 11, 2009
The Words I Would Say
What would I say? Be strong in the Lord ~ Never give up faith ~ You are going to do great things ~ God's got his hand on you so don't live your life in fear ~ Come find peace in the Father
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4:12 PM
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Labels: Chiari, fear, hope. music
Thursday, September 10, 2009
Just Breathe
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