This year on September 20th is the first ever Conquer Chiari Walk Across America. I am going to participate in the walk along with my family and other chiarians in the area. I am looking forward to meeting some friends and sharing stories with others on how chiari effects our lives. My hope is one day to find a cure ~ but until then we can raise chiari awareness and raise money to support research for a cure. The NY state governor has officially made September 2008 Chiari Awareness Month! If you are interested in joining us on 9/20/08 ~ just leave me a comment and I can send u the detailsOK ~ I admit it ~ I totally hate asking for support, it's just my nature, but if you feel like sponsoring me, you can click on this link ~ to so so. The money is going towards a life changing cause! You know those neat "Stand Up 2 Cancer" ads that are out there right now ~ my dream is for people to stand up 2 Chiari. You mention cancer and immediately everyone knows ~ big deal, serious disease, right? Well most of the time when I mention Chiari people squinch up their noses and say, "What's chiari?"
WHAT? A series of coordinated Chiari walks held at the same time across the country.
WHERE? It is our goal to have at least one walk in each of the 50 states. Clock on this link listing all of the walk locations. Locally: Albany, NY
WHEN? Saturday, September 20th, 2008. September has been named Chiari Awareness Month in several states. In conjunction with the Walk Across America we hope to get more states to recognize September as Chiari Awareness Month.
WHY? To raise awareness of Chiari; to raise money for vital research; and to get people involved.
WHERE? It is our goal to have at least one walk in each of the 50 states. Clock on this link listing all of the walk locations. Locally: Albany, NY
WHEN? Saturday, September 20th, 2008. September has been named Chiari Awareness Month in several states. In conjunction with the Walk Across America we hope to get more states to recognize September as Chiari Awareness Month.
WHY? To raise awareness of Chiari; to raise money for vital research; and to get people involved.
6 comments:
Do you know how I could get more information about this? I live in Florida.
Thanks!
I am completely intrigued and am about to go investigate this fundraiser.
But before I do, I gave you 3 blog awards. Go check em out.
I, as well, Have Chiari. I live in Albany and will be attending the walk in Albany's Washington Park with my boyfriend!
Hi Lacie ~
I would be honored to support you. :-) I look forward to hearing where to send my supportage! :-) Blessings on you - I keep you in my prayers.
Blessings, Love & Peace,
RH
Thank you so much for the link, I've made my donation. :-) I wish it were more (sigh), may God take it and multiply it.
Blessings!!!
(I've put your walk on my calendar and will be with you in spirit as well as with you in prayer).
RH
Lacie -
Found your blog! You're such a good writer.
You happen to also inspire me in your approach to chiari, and you should know I find encouragement and inspiration in you! :) Thanks for all YOUR support of me. In return, I've made a (somewhatsmall) donation for your walk, and look forward to either being there or hearing all about it.
Kelly W(and Eric)
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