Saturday, June 8, 2013

Outside the Box

A picture says a thousand words, right? I've made the photo above my screen saver at work. It's a constant reminder to think outside the box and to look up every once in a while. So many times a day I find myself a victim of brain farts ~ ooo shiny! What was I just thinking about? I had a thought and just like that, poof! It's completely evaporated.

So, like I was saying, I've been thinking way outside the box ~ looking for a unicorn or a zebra in a herd of horses. I saw my most favorite endocrinologist in the world last week and after listening to me rattle off my numerous growing neurological chiari/cranial settling related symptoms, he emphatically told me that I was skating on thin ice. That's always a wake up call when you hear that from someone that you trust in the medical community. ~ sigh ~

After digesting my doctors concerns for my health, I took a deep breath and shared this bizarre, outside of the box idea with him to help validate that my idea wasn't completely off the reservation. I've been thinking lately, most of my symptoms lately: migraines, vertigo, trouble breathing, insomnia... are all related to cranial settling. After seeing my Chiari friends go through fusion surgery only to have the fusion rods re-done just a few years later, I really want no part of that routine. With that said, I vividly remember my Invasive Cervical Traction procedure that I had the day before my brain surgery.

At one point during the procedure, even through the twilight haze, I remember Dr. M discovering that when they lifted my head up and over and then down there was a remarkable change in symptoms and CSF flow. He was very intrigued since he had not seen a positive result before with that set of motions. So, I was thinking, if this procedure helped me to feel pretty good for a few years, why can't I go in for this type of surgical procedure again? Sure, I would miss a few days of work, but it's an outpatient procedure with no recovery time. How crazy would it be to at least start a dialogue with my doctors to see if this is a possibility.

Shockingly enough, my doctor totally was on board with my idea and didn't think it was crazy at all.

I feel like I keep buying time ~ waiting for technology to advance, looking for a less invasive more long lasting solution. I know there's no cure for Chiari ~ but this girl is still searching for a silver lining ~ a sliver of hope....

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