You know it's just about a month until "I Want To Believe" comes to the theater ~ I am brushing up on all things Mulder and Scully. I found this vid tonight ~ if you can block out the music in the background they have captured some funny moments. If you are an X-Files nut you will love it. Enjoy ~ also a vid of Mulder/Scully moments ~
Wednesday, June 25, 2008
Tuesday, June 24, 2008
A vision of a giant can of worms comes to mind ~ a huge tin can writhing with Jurassic worms! Seriously, am I ready to find out if my daughters also carry the mutated genes that create too much collagen, occult tethered cords and chiari malformations? Realistically, if we do find that they are going to need surgery, I at least want to get my brain decompression out of the way so that I will feel better and can focus on nursing them back to health. Deep breath ~ sigh ~
So while the unassuming pediatrician was filling out the paper work we had trucked in to the office I gave her a subtle warning ~ I told her I had some questions ~ she said she would love to multi-task but wanted to finish filling out the paper work first. I told her I had a 'Double Jeopardy' question ~ she later told me I should have called it 'triple whammy jeopardy'!
After all the paper work was completed, I started the conversation with, "Are you familiar with a brain malformation called Chiari? A collagen mutation called Ehlers Danlos? A spinal deformation called 'Occult Tethered Cord'? You could see the immediate concern on the doctor's face. I tried to sum up my health abnormalities in 3 minutes ~ then voiced my concerns that my daughters might also have the same conditions. After much dialog back and forth ~ we decided to go ahead and start with my youngest, Skyler. She's got a couple of external markers indicating TC and of course with the uber bendiness of her joints she oozes with EDS already ~ So I guess you could say that I am getting my ducks in a row.
Our pediatrician remarked about the calmness we all possessed while talking about spinal and brain malformations ~ heavy topics ~ HUGE ~ but you know what? I have had a long time to sit with the information ~ mulled it over in my brain many times. I guess you could say that we are all a little callused. I have done my homework. I know what is at stake ~ if left untreated, my kids will probably be facing brain surgery some time down the line. If there is anything in my power to prevent this from happeneing ~ I will do it. But seriously ~ how crazy is all of this?! My youngest child is healthy ~ no complaints ~ active, energetic, creative, loving ~ nothing is shouting 'occult tethered cord'~ but I have an intuition that something is not right.
I was so relieved when our pediatrician sat and listened to our story without missing a beat ~ no rolling of the eyes, no deep heavy sighs, no interrupting me in mid-sentence. We are blessed to have a doctor who is genuine and caring. She agrees with me and supports getting Skyler checked out first ~ see what we find and go from there. You know how I have talked many times about perspective ~ how God sees the whole picture and we see just a tiny view of what is happening. Well this afternoon my perspective came into focus just a little bit more. Maybe the reason why I am going through all of these Chiari pains is to prevent my children from suffering. Seriously ~ I am still amazed that one little MRI turned my world upside down and brought instant clarity at the same time.
Maybe there is something wrong with me, but this progression of events seems as it should be. I'm not freaking out about the possibility of going through all of this with my kids ~ All is happening for a reason ~ reasons I can't possibly fathom. But through it all I hear the sound of God's gentle and powerful voice (I hear Him as James Earl Jones sometimes in my head ~ think Mufassa from Lion King) telling me that He will not leave me or forsake me. There is nothing too big for Him to handle and I trust in the truth of that statement. Oi! It's been a while since I have done some heavy blogging ~ but there it is ~ more developments to follow ~
Sunday, June 22, 2008
Ever since I was a little girl I have been fascinated with the summer Olympics in particular. I absolutely love watching the gymnastics events and follow them pretty closely. This weekend were the Olympic trials for both the men and women gymnasts. The men's team has been announced ~ Joe Hagerty, Morgan Hamm, Paul Hamm, Jonathan Horton, Justin Spring & Kevin Tan. The two top women gymnasts: Shawn Johnson and Nastia Liukin are already on the team and now 12 Olympic hopefuls will find out if they have made the team after the training camp in mid July.
After watching hours of gymnastic this weekend I am super excited to see them represent the USA at the Olympics starting on 8-8-08. The gymnasts are have mad gymnastic skills and I feel like we have what it takes to take the gold! Looking forward to a more pain free week this week. Enough of the low pressure headaches ~ they are making me lose my personality.
Friday, June 20, 2008
I recently found the picture posted at the right ~ it's a good illustration of a herniated cerebellum. The herniation in this picture is pretty similar to mine ~ even the length of the chiari herniation touching the top of the C2 is right for me, too. I continue to pray for patience ~ pray for guidance and clarity on how to proceed. I got the green light from the insurance company regarding the brain surgery. All I have to do is call them when I am ready and they will type out another authorization letter for me. Whew ~ what a relief to know that I won't have to battle the red tape again.
I finally broke down and took some pain killers for my head today ~ the pain is almost at the 'morphine worthy' pain level. Reminds me of the story about Zeus and his uber headache that ended with the birth of Athena ~
In time Zeus developed a "splitting" headache and shortly thereafter theBut seriously ~ enough with the uber low pressure fronts and thunderstorms. Bring on the sunny, breezy summer weather ~ please! I am headed up in the Adirondacks tomorrow as a chaperons for my eldest daughter's hike with her Girl Scout troop. I hope that all of this wet weather hasn't turned the trails into a mud slide. We might go strawberry picking on Sunday ~ looking forward to a rejuvenating weekend. True Story ~
great goddess Athena was born from his head. The god of the forge and smiths,
Hephaestus, seeing the discomfort that his King Zeus was in, took an axe and
sliced open the head of Zeus, relieving his pain and bringing forth Athena.
Athena was dressed in a robe that Metis had created while trapped inside Zeus, and the goddess of Wisdom was carrying a splendid shield and spear (No wonder Zeus had a headache!) She came into being shouting a war cry that was heard on heaven and earth.
Tuesday, June 17, 2008
Tim ~ you be greatly missed! http://www.msnbc.msn.com/id/25186698/
Sunday, June 15, 2008
So, with that said, I encourage you to say what you need to say ~ heal broken relationships ~ muster up the courage and let your heart speak for you.
SAY ~ John Mayer
Sunday, June 8, 2008
I had high hopes of hearing some more owl serenades and was thrilled to hear two different owl calls. First I heard an Eastern Screech-Owl. You could easily mistake their call for the whinny of a tiny pony. Saturday night there was a brief Barred Owl serenade ~ their calls sound like "who cooks? who cooks for you?"
The weekend went by so fast, but I feel relaxed and rested. The campground was pretty much empty so we had the freedom to laugh and talk until the Jurassic moths were threatening to take over our campsite. Yin Metal Rooster, Yin Wood Rooster, Yin Metal Snake ~ thanks for the memories and I am looking forward to the next camping adventure. Yang Fire Tiger ~ Out
Tuesday, June 3, 2008
Sunday, June 1, 2008
Ever since I saw Prince Caspian this song ~ The Call ~ has been playing in my mind ~ so wistful ~ hopeful ~
The Call ~ by Regina Spektor
It started out as a feeling